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I’m going through a very similar thing except with blood clots and anticoagulants. I was in the hospital for 3 days for a pulmonary embolism, but the docs couldn’t figure out why. Instead, they just put me on the blood thinners for life.
This is a big bummer because I have a pretty active lifestyle (cycling, caving, scuba) and being on the meds means I can’t feel safe doing these things anymore.
I’m trying right now to talk to different doctors and see if there’s a way to safely stop the meds but I’m fighting against their flow charts that simply say this is the reality from now on.
I can’t comment on the state of the German system, but agree with everything you said otherwise.
One of the worst parts is that in the absence of critical thought by doctors, it feels like the only choice I have as an individual is to try and figure things out myself. But God forbid I actually mention thinking deeply about the issue to a doctor - I’m immediately labeled non-compliant / hypochondriac. You can’t fucking win.